Showing posts with label amniotic band syndrome. Show all posts
Showing posts with label amniotic band syndrome. Show all posts

Friday, September 13, 2013

Finger Surgery

Over two weeks ago, I had surgery on my middle left finger.  As you are all aware, I have amniotic band syndrome.  If you want to read some things I've written, check here and here.  There's lots of internet resources to explain the syndrome if you don't quite understand it (or ask me in person, I have an awesomely rehearsed spiel that I can give because I've told numerous people before).

Anyways, this post is going to be about my experience with the surgery since the only other surgery I have had as an adult is oral surgery to remove my wisdom teeth (and to put it bluntly, it was hell - the teeth surgery).

Thursday morning, Jared and I showed up at the outpatient surgery place.  The nurse checking me in let me know it'd be a day of luxury and people waiting on me (to which I immediately rolled my eyes).  I hadn't eaten anything in over twelve hours, so I was kind of hungry.  After changing into the infamous hospital gown (sorry no pictures), I met with the anesthesiologist resident who explained the nerve block they were going to use on me.  I also found out that I was going to be awake during the procedure (how comforting).

The resident returned with a doctor-in-training to put the iv in.  If you don't know me, I have the worst veins possible.  When I donate blood, I usually have to have the most experienced needle-poker-inserter possible because my veins are hard to find, they roll when a needle comes near, and they just plain don't like needles.  Anyways, the residents (or whatever) worked on trying to find a good vein to stick the iv in.  Since they had to put it in my right hand, I had to sit up on the bed while they did this.  The newbie put an anesthetic on my skin and proceeded to guide a needle into my vein.  After feeling the first tug of pain from the needle, my vision began to go black around the edges and all I could see was Jared.  Apparently, the color must have drained from my face and the resident realized I was about to blackout.  So they had to pull the needle out and let me lie down and attempt to calm down.

At this point, it wasn't just my vision that was blacking out.  My hearing had gone as well.  Yes, my body in extreme distress just decides to pretend nothing's happening by shutting down.  Did I mention I was also hungry?  That wasn't helping my situation.  After the second attempt by the newbie to get my iv in, the resident had to take over and select a different vein that turned out to be more successful.  Hardest part of the surgery was now over.

Did I mention that having fluids from an iv enter your body is the weirdest thing?  It's also super cold because the fluid is at room temperature while the body's like 25 degrees warmer.  As soon as fluids started entering my body, my shaking hands stopped shaking, and my vision/hearing returned to normal.

Anyways, on to the surgery.  I was wheeled to a small-closet-like room where they inserted the nerve block.  They mentioned that I would get that good feeling where I'd have no care in the world.  I'd also probably suffer a little bit of amnesia.  Whatever, I didn't care at this point.  I just remember they kept poking my arm asking me if I could feel that.  I kept saying yes (but I must have eventually said no, right?).

Away from the closet we went and into the operating room.  All I remember was it being super bright, white and country music (at least I think it was country, the amnesia could have kicked in by then).  They pulled my arm away from me and covered me with a blue cloth (I'm assuming this was to keep me away from the action).  The last thing I remember feeling in my arm is them wiping it down (probably with iodine or some other heavy cleaning agent) and taping something to it.  The people monitoring the anesthetic sat with me the whole time.  Every few minutes they'd ask if I was okay.

I think the first time they asked if I was okay, I answered in the calmest, deadest voice, "I hear saws."  Apparently that wasn't a good response because they jumped into action with "Raise the dosage" and must have raised my anesthetic or whatever it was.  I didn't care.  My eyes immediately closed and I was thinking about swimming in blue skies (did I mention the cloth covering me was blue?).

The doctors working on my finger did a lot of talking along with the surgery-stuff.  But the only thing I remember hearing coherently was "Oh, she'll like that" towards the end.  I can only assume that was in regards to the color of wrap they used to cover my splint; it was green.

I was wheeled back into my recovery cubicle where Jared was waiting.  I felt great; this surgery was nothing.  They gave me graham crackers.  Those were the best tasting graham crackers I've ever had.  And they got me up and walking, and asked if I was ready to go home.

Before releasing me, they went through a lot of stuff, like when the nerve block should wear off, keeping my arm elevated, etc.  Truthfully, I was thinking about going home more than I was paying attention.  Which is probably why they were looking at Jared while going over everything.  I was given oxycodone for the pain and sent home.

Did you know that an arm is kind of heavy?  With the nerve block, I had no control over my arm.  I remember sitting on the couch and adjusting my position only to watch my arm flop over on its side.  My fingers were slightly bent in a resting position, but they felt super stiff.  And no matter how hard I tried, I could not move my fingers.

The rest of that Thursday went by pretty normally all things considered.  And then I took a pill and went to bed thinking this surgery was easy and awesome.  Fast-forward to one in the morning and I'm awake.  My fingers are twitching.  My thumb and fore-finger are moving.  But for some reason, I can't move my pinky which is throwing alarm bells (my pinky is what keeps me functioning).  But never mind that, I'm in pain.  The worst pain ever.

I grab my arm, get out of bed, and proceed to look for Jared.  He unfortunately shut the door on me, and it's very hard to open a door when your functioning hand is holding the non-functioning one.  Through my sleepy-pain-filled mind, my functioning hand let go of the other one to open the door.  Good thing that my elbow had gained enough sensation to hold itself up (while my wrist immediately plopped towards the floor).

I don't think I've ever cried that much over pain.  Jared had me take two pills and waited until I fell back asleep.  Did I mention your only supposed to take oxycodone every six hours?  I woke up at five in the morning and took more pills.  I believe I was taking on to two pills every four hours for the first day.

Then I was up at 6:30 and awake.  So I figured I'd get up, take my pills, and try to watch something while ignoring the pain.  That first walk from the room to the couch was hard.  Dizziness and nausea assaulted me.  I kind of flopped into the couch and kind of hoped Jared would wake up soon to carry me to the bathroom (because I had to pee).

Oxycodone sucks.  I don't know why people would want to take this recreationally.  It's like having the world's worst hangover ever and still having excruciating pain.  In my opinion, it doesn't work like it should.  I called one of the nurses and told them the medicine wasn't working.  They informed me that I was on the heaviest medication possible, the side effects sucked but the pain would be much worse if I quit taking the pills.  They also told me all I had to do was get through the first 48 hours, and my pain would begin to subside.

On this day, I began to question my sanity as to why I'd agree to get surgery in the first place.  I had no recollection of how much pain you'd experience after finger surgeries (and I've been through many over twenty years ago).  The only memory I have is me crying at night, and my mom giving me codeine or something (and using weirdly bent hangers in an attempt to scratch my arm under the cast).

Fast forward a week, and I got to see my finger for the first time with the splint and gauze off.  My first reaction was, "I look like Frankenstein."  It was in reference to the stitches.  I couldn't look at my finger.  However, my ring finger and pointer finger could feel that my middle finger was now straight.  My ring finger now had a whole lot of range of motion without bumping into the middle one.  And my fore finger felt a little crowded now.

The doctor checked my finger, someone removed the stitches (which was another painful moment - I still have the bruises from removing the stitches), and then I had a couple of splints custom-made for me.

When I got home, I truly looked at my finger.  It's so different.  And once I noticed where the incision marks were, I had to quit looking at it and put it back in its splint.

Was the surgery worth it?  I sure hope so, but I think only time will tell.  Yes, my middle finger is now straight and doesn't move when bumped on its own.  It will never again mistakenly scratch my pinky and give it painful open-sores.  However, there are two wires in my finger that I swear I can still feel.  And if I put pressure on my finger, I swear I can feel the wires move.  I'm hoping my finger's still in the process of healing, and those wires will be set more in place once my finger's fully-healed.

But now I have to relearned everything.  I work in a lab where I use my hands all of the time.  I'll have to relearn to how to type with my middle finger (since it's now a key set over, it'll have to cover a new set of keys while my pinky becomes responsible for more keys).  I'll have to relearn how to play the piano.  I'll have to relearn how to play the violin.  How to hold a bowling ball when I go bowling.  Just so much it's overwhelming.  And time's not going any quicker to help the healing process, but I guess I'll just have to have patience and trust that I can relearn everything.

Some pictures:

My hands before the surgery.  Focus on the left middle finger.  I'll have to try to find some better before pictures...

The middle finger's straight!  It's also a little fatter due the wires (I'm guessing).  And those black lines?  Why yes, that is the incision mark (gross, I know).

Look: bunny ears!  And one of the ears isn't floppy (or bent).  And the shirt's my new favorite shirt, compliments of the Lucky Fin Project.

Friday, November 12, 2010

Weekend

I have survived my twelve day work-week (done in two weeks, haha).  And my reward?  I got Friday off.  So, I've enjoyed the day being lazy and sleeping in for an hour and a half.  Gizmo had some major issues this morning and peed all over the floor.  I swear in some ways, Gizmo is slowly preparing me for kids.  He gets himself into trouble and then tries to hide from me once I've seen the mess.  And then he spends the next hour trying to please me to get back on my good side...

Anyways, Jared had the day off today also.  We went to Borders and the mall.  i realized two new books from a couple of series I've been reading came out.  I bought one of the two and will wait to buy the next book once I've caught up in reading.  We went to the mall to get our free truffles from Godiva (free with the rewards program which also free -recommend it if you want a free truffle every month).  We went to Kohl's and did a little Christmas shopping also.  I applied for my Wisconsin driver's license today.

At the DMV, one of the workers was missing hands.  I thought about asking him if it was ABS, but chances are it wasn't since he had nubs (ABS people tend to not have nubs).  And besides that, he was working and it's not like I need to be rude and point out the fact that he's different from other people.  I still haven't come up with a nice way of saying, "Look, we're the same...  Weird, abnormal hands!!"  Awkward silence and then transition into the childhood horror stories we've experienced.  I don't know.  It's just too hard to group yourself and someone else based on some abnormality because then it just constantly points to your abnormality.  Maybe I'll make a group called Abnormal Hands United and make it exclusive.  Only cool people with abnormal hands can join.  Somehow, I don't see many members joining that anytime soon...

On a more depressing note, the USU Bowling coach died last week.  It's super sad.  It's hard to believe he's gone.  He helped me improve my bowling skills (well, he helped me actually keep the ball from guttering constantly).  It's just sad.  My heart and prayers go out to his family and the USU bowling team.

Well, now that I have some free time on my hands, maybe I'll be able to clean the house...  It's a disaster zone right now.

Tuesday, October 19, 2010

Cast Pictures

A reminiscent post.  And it's about casts like it says.  First up is Gizmo...

This picture was probably taken the first week we got him (May 2009).  His leg had been broken for three months I think.  And he hadn't had a haircut since his leg was broken.  I had to call around to find a dog barber who would deal with a dog with a cast.

This is him after his haircut.  The bones in his leg wouldn't heal back together.  His leg was removed a month later (very horrible experience and I hope to never have to relive it).  He also happened to chew up this bed completely.  It was a nice bed until he ruined it.

Next up...  Me (because I like my baby pictures, haha)...

One of the first ( if not the first) surgeries done on my hands.  And if you honestly have no idea why I had surgery on my hands, then you don't know me too well (I have amniotic band syndrome just in case you really didn't know).


You can barely see the cast in this picture (it's the pink blimp on the left).  Being a three-year-old girl choosing the color of my next 5 casts with one simple word ("PINK!!!!").  And that is how I ended up with bright pink casts; I don't think other colors existed to me back then).

Now, why did I post pictures about casts?  Honestly, I have no idea why.  Life is boring, and I found these pictures.  And just in case you happen to fall into the category of "My dog's leg broke and is going to be removed" or "I'm about to have a baby with amniotic band syndrome," I can loan a shoulder to cry on and ears to listen to your worries.  And I can also tell you it'll be okay and life does go on.

Saturday, October 9, 2010

Finger

You'd think I'd be over all of this amniotic band syndrome silliness...  As much as it is a part of me and no matter how much I accept it, I'll still always wonder why and what if things were different...

I must say that I am very thankful for living in Wisconsin.  I'm thankful for the coworkers I deal with, the friends I have, and the people I see at church.  Because no matter where I am or how much I may consider some one a friend, no one has asked me about my hands.  Maybe those friends are waiting to catch me alone or waiting to be good friends before asking, who knows?  But I haven't had to lay my whole life story out to acquaintances only to hear awkward silence followed by a mumbled, "I'm sorry" or something along those lines.  It's been nice to actually keep this knowledge to myself.  But it's also weird.

Maybe Utahns are more open with asking personal questions.  Or they're more nosey.  I'm sure I'm the nosiest person out there (yeah I kill the cat all of the time with curiosity).  And while there's nothing wrong with people asking me about my hands (usually, I'm not stand-offish when it comes to my hands), I just feel like the conversations can get very one-sided.  For example, having people ask me when I worked in retail, they didn't know me and had no business asking, yet they did.  And I didn't force them to spill their whole life story about why their eyes are blue or why they're so tall (you get my point, maybe).

It's nice not having to talk about it constantly.  But I still catch the subtle stares.  They look when they think I'm not watching.  Or when they're caught off guard by watching me type.  I do have to give people credit with how fast they can regain their composure and act like they didn't just witness something completely bizarre.

I'm happy with my hands.  Happy with who I am.  But some days, I have to indulge in the what-if's and how life could be different.  And while I'll never be able to answer the why's, I at least take comfort in the fact that God knew what He was doing when He created me.

On a completely different note (and not so personal), we went and saw Wicked last week.  It was awesome. I had a few reservations about it at first because of all the girls I've heard sing the songs (not so well, but kudos to not caring what I or others think).  But the musical was awesome.  And I look forward to the next one I get to attend.

The Music Hall or whatever it was they performed in was nice.  But it wasn't really built outwards.  Rather, it was built upwards.  The rows went up three seats as you went higher.  I was a little afraid of the height.

And before the musical, we went to a Mexican restaurant downtown.  It's probably the closest we've come to with good Mexican food out here (did I mention Wisconsin's like it completely bland and without spice?).  And while we were eating, we got to witness our first protest rally.  Now, let me remind you that Madison is super-super liberal, and it's a huge college town (think opposite of Logan's ultra-conservatism, and if you thought Logan was a college town, it's not big at all).  Anyways, can you guess what the protest was for?  It was for the legalization of marijuana.  I'm pretty sure I could count the people over the age of 30 joining in on the protest with one hand.  It was a lot of hooded, baggy pants, makes-you-want-to-pin-a-"Trouble"-sign-on guys.  Very interesting...  It certainly made my day, haha.


Wednesday, April 14, 2010

Amniotic Band Syndrome

Some days, I ask why me.  It's like I rose my hand and jumped up and down when God asked who wanted a different challenge on Earth.  A challenge we both knew I could do.  But one always finds that accepting the challenges, as rewarding as they may be in the end, are still difficult to overcome.


If you know me well enough, then you will hear me crack jokes about myself, including my hands.  And some people give me these weird looks, almost like I shouldn't be laughing about something so personal.  But how am I supposed to treat my hands?  As a disability?  They don't disable.  Sure, they slow me down sometimes, but I find my own path to doing things.  And if I can't bring laughter into this world, then what's the point?  My hands are not meant to receive guilt and empathy from anyone.  Sometimes, I just want people to see things from my view even though it may be a ridiculous view.



My mom once showed me a paper she wrote for an English class in college (the baby me came before college).  It was about her first experience with childbirth.  A type of experience that almost no other moms will experience, and I hope they never do.  The baby that I used to be (some 22-odd years ago) was taken away from my mom the minute she came into the world.  The doctors wanted to be sure that my physical disfigurement was only exterior and not interior.  Two hours and a million tests later, I was deemed healthy aside from the hands and feet.  Now two hours may seem like nothing, but for a just-barely mother who has been told nothing about her baby?  I believe that has to be one of the worst kind of agonies out there.



I have had around seven surgeries, three of which I can remember.  These surgeries began at two months of age with separating my toes.  And I am very much thankful for that because I can wear flip flops nowadays.  The surgeries on my hands included further separating my fingers, removing tissue from swollen fingers, adding a bone to a finger to give it stability, etc.  This was all done before I started kindergarten.  A lot of memories in a big blur and a lot of non-understanding at the time.


I have so many stories involving my hands.  So many statements.  So many weird and original point of views thanks to my hands.  And depending on how long you've known me, you've heard some stories.  Maybe everything you're reading in this post is nothing new.  Or maybe it is all new.  All I can say is what I have mentioned is only the tip of the iceberg.  And if you include everyone who has ABS, then you're looking at an ocean-full of memories and knowledge.

How I would like to end is to mention a friend.  If it weren't for our common syndrome, we would never have met each other.  He is going on a bike ride this summer to raise hope and awareness for amniotic band syndrome.  Check out his blog.  He has a story.  I have a story.  Everyone has a story (regardless of what they were born with).